A curated collection of databases, organizations, and tools for researchers, clinicians, and patients.
๐ฉบDisease Information
Comprehensive overviews of different types of blood cancers, their subtypes, and common treatment approaches.
๐Learning Center
Educational resources designed to help newly diagnosed patients and caregivers understand blood cancer fundamentals.
Your First Year Timeline
A timeline of what the first year of treatment can look like, from diagnosis through recovery.
Blood Cell Production
Understanding how blood cells are made and what goes wrong in leukemia.
Mutations
Learn about common genetic mutations and how they affect treatment.
Mutation Explorer
Interactively look up mutations from your own test report and what they mean.
Risk Stratification
How doctors categorize risk to personalize your treatment plan.
Stem Cell Transplants
What to expect before, during, and after a transplant.
Lab Results
Understanding your CBC, differential, and other common blood tests.
Clinical Trials
How trials work, where to find them, and questions to ask.
Treatments
Overview of treatment approaches including chemotherapy, targeted therapy, and immunotherapy.
Medications
Common leukemia medications, how they work, and what to expect.
Supportive Care
Managing side effects, maintaining quality of life, and caregiver resources.
History of Leukemia
The journey from earliest descriptions to modern targeted therapies and immunotherapy breakthroughs.
Kids & Pets Post-Transplant
Safety guidance for living with children and pets during neutropenia and transplant recovery.
Physical Therapy
Rebuilding strength, fighting fatigue, and recovering mobility during and after treatment.
Cooking & Nutrition
Neutropenic diet, food safety, soft diet tips for mucositis, and anti-inflammatory eating.
๐งฌCancer Genomic Databases
cBioPortal
Explore, visualize, and analyze multidimensional cancer genomics data from large-scale cancer studies.
COSMIC
Catalogue of Somatic Mutations in Cancer - the world's largest source of expert manually curated somatic mutation information.
The Cancer Genome Atlas (TCGA)
Comprehensive genomic characterization of more than 20,000 primary cancer samples across 33 cancer types.
GDC Data Portal
NIH Genomic Data Commons - unified data repository enabling data sharing across cancer genomic studies.
Vizome
A collaborative platform for exploring and visualizing multidimensional cancer genomics data, with a strong focus on hematologic malignancies.
๐คPatient Advocacy & Support Organizations
Blood Cancer United
The world's largest voluntary health organization dedicated to funding blood cancer research and providing patient support.
Be The Match (NMDP)
National Marrow Donor Program - connecting patients with life-saving marrow and cord blood transplants.
American Cancer Society
Nationwide organization providing cancer research, patient support, and educational resources for all cancer types.
CancerCare
Free, professional support services for anyone affected by cancer, including counseling, support groups, and financial assistance.
American Red Cross
Providing critical blood products and support services to patients across the country, especially those undergoing intensive treatment.
Know AML
The first global AML awareness initiative, providing patients, caregivers, and healthcare professionals with information, resources, and support for acute myeloid leukemia.
๐ฌClinical Trials
ClinicalTrials.gov
U.S. government database of clinical studies conducted around the world. Search for leukemia trials by location, phase, and type.
NCI Clinical Trials Search
National Cancer Institute's comprehensive database of cancer clinical trials supported by NCI and other organizations.
EU Clinical Trials Register
European Union's database of clinical trials conducted in the EU/EEA, providing information on trial protocols and results.